I thought I’d give you a little background information about my disability. It’s not something I’ve previously spoken about much in my blog, so this is my story.
I started life as an able-bodied little girl who did all the usual activities that young children do. I was always small, skinny and underweight, but there were advantages to being as I was. I could shin up the gym apparatus faster than many children in my class. Considering I was sometimes thought of as a weed, I did pretty well. I grew up, married, had my two children, Tom and Clare, and then my ex left. I continued to raise the children alone and also had to work to bring some money in for us to live on. It was a tough time, but I was very content. Between school runs, the children’s football matches and netball, I was a carer and home help for ten years (I’d initially trained as a secretary and worked in the City of London for several years). I combined my work which I loved, with caring for Tom and Clare; we were a very happy little family.
When the children were about thirteen and eleven, I saved enough to take them to the funfair in town (Essex in the UK). It was there that I had my accident which was to change the course of my life.
When our carriage crashed, I felt a tremendous jolt that jarred my neck and spine. Eventually, after a lengthy spell in hospital (with my children staying with my Mum) and with many tests, x-rays, scans and examinations, the doctors decided I’d damaged the nerve endings leading from my spine. They said it was permanent. It was an awful lot to come to terms with, but over time, I grew, not so much to accept it but more to live my life despite it. I wasn’t about to give in easily. The pain was awful, though, and I was on morphine for quite a while. It wasn’t all bad – I was away with the fairies much of the time 😄!
Fast forward twenty years. It was recommended that I have a DEXA Scan as osteoporosis was suspected, given that I’d always been small-boned, had experienced a few years previously with anorexia, and being unable to exercise very often. When I got my results, I was unsure who was more shocked, the radiographer or me. My T-scores were appallingly low. A score of -2.5 indicates osteoporosis, but mine was -4.5, which meant I had severe osteoporosis.
I was told I could die if I fractured my hip or be left even more disabled if I injured my spine. I have to admit I was scared – very scared. Every move I made seemed risky, and I lived in fear for a while. I became super-careful with everything I did, but two years ago, I tripped over Peanut (my new cat) while transferring from my wheelchair to my walking frame. There I was being rushed off to Accident & Emergency for the second time. I was in agony. I’ve never felt pain like it. After all the x-rays and scans came back, the doctors announced that I’d broken my pelvis, not once, not twice, but in six different places. I don’t do things by halves. If I’m going to have an accident, I’ve got to do it in style!
Strangely enough, contrary to what most people would think, I don’t have any regrets; I’m not angry or bitter or in the least bit dissatisfied with my life. I am who I am. Without the experiences I’ve been through, I wouldn’t be me. I wouldn’t be Ellie.
My next post (Part Two) will be about my journey back to good health and where I intend to go from here on in.