The Rope

Trying to be more upbeat
But just so full of grief
Wanting to be hopeful
My joy stolen by the thief

Started off my journal now
Complete with gratitude
Trying to turn a corner
While battling low mood

Firing all my engines
In the hope of rising up
Searching positivity
In a half-empty cup

Try smiling in the mirror
No one grinning back
Seeing all the wretchedness
While watching life unpack

Searching out life’s colours
Standing in the sun
It’s dark before its time
Again the night has come

It’s hard to keep on going
A battle just to cope
Is there really any point
Holding on to the rope?

Photo by Carson Greenhalgh on Unsplash




On the Death of Our Queen

Her Majesty Queen Elizabeth II – 1926 – 2022

As a UK citizen, the death of our Queen came as quite a shock yesterday afternoon. Naïve, perhaps, given her age. I should have expected it, but somehow, because it was only three days ago, when she was pictured smiling whilst greeting and welcoming our new Prime Minister, Liz Truss, I was, for a while, lulled into a false sense of security. I’m not a fan of Liz Truss at all, but I didn’t envy her having to come up with a speech within two hours of the Queen’s death.

I’m not a staunch royalist, but I have a lot of respect for the royal family despite all the difficulties various family members have encountered over recent years. After all, they may be royals, but underneath the surface, they are just human beings and as fallible as the rest of us.

I have never known another King or Queen to be on the throne; it’s going to take some getting used to saying King Charles; I keep going to say Prince Charles. I’m sure I’m not the only one who feels the same.

Some of you may know (and perhaps, disapprove; not that I need approval), but I’m a member of Extinction Rebellion (XR), as I’m passionate about taking action against climate change and getting our government to act like it’s the emergency that it is. However, I’m not going into a political debate here. There was due to be an XR festival in London this weekend. I was going to go, which would have been a real challenge as it meant a journey to Hyde Park via one overground train, one underground train and two buses – all in my wheelchair, Alfie. I was determined to take part, though. Obviously, under the sad circumstances, it would not have been respectful for this to continue to take place; apart from which, Hyde Park is one of the royal parks, so that deemed it even more inappropriate. Of course, rebels were disappointed as an awful lot of work had gone into the planning and organising the event. I’m sure it will be rescheduled for a later date.

Anyhow, that’s all I wanted to say. I very much feel for the royal family in their grief as the UK enters a period of mourning. Naturally, not everyone feels the same; some people on a local neighbourhood website have been downright disrespectful. Is that really necessary, I ask myself? No, I think not. If they don’t have anything kind to say, then I believe, under the circumstances, they should keep quiet. Why is it necessary to be so rude, albeit everyone is entitled to their opinions? So, now the UK has entered a new era. I wonder what changes will be made now that Charles is King.

My deepest condolences and respect to the royal family.
RIP Queen Elizabeth II.

Wars – so futile – my family’s ‘blood’*

WHEN … HOW … IF ONLY …

I am almost lost for words so I’m borrowing the Jimi Hendrix quote …

“WHEN THE POWER OF LOVE OVERCOMES THE LOVE OF POWER, THE WORLD WILL KNOW PEACE”.

I’ve wanted to write about my feelings over this war. I wanted to write something worthwhile, something moving, poetic perhaps but I feel nothing I can say can do enough justice to this situation and the terrible suffering of the Ukraine people. I’ve been so lost for words that all I can do is to write what is in my heart …

This Russia – Ukraine war … any war … is futile. It’s awful, appalling and totally heartbreaking. I watch the news on television a couple of times a day; I hear the news on the radio – every hour and it just gets worse and worse; it gets more and more terrifying and horrific and I fear for the innocent and brave Ukraine people. However, I’m trying to take a break from the news today because it’s beginning to break me but I feel guilty at not keeping up with the latest developments knowing that the situation is likely to get worse. I feel helpless to do anything other than to send money which I have done. All war is brutal and barbaric.

The Second World War broke out on my birth date in September 1939. I wasn’t born then but so many of my family members were. My birth religion is Jewish; my grandparents and the generations before them lived in Poland, Lithuania, Russia and Hungary. They were caught up in the war when Adolf Hitler invaded and began to send the Jews to Auschwitz during the Holocaust. All Jews were made to wear armbands with their religious sign of The Star of David on them. This included my family. This is their story …

The Jewish people were made to wear this badge on their armbands. It’s the Star of David (their religious symbol). This was so they could be easily recognised and made targets of.

Many of my family members died in the horrific and inhumane internment camps in Auschwitz. There are chunks of my family tree that are missing. We’ll never know how our family died other than to say it would have been an atrocious and pitiless ending of their totally innocent lives. It hurts me to think about it and yet somehow, it helps to ‘talk’ here. I should say, it’s definitely not my aim to upset of offend anyone reading this.

One of my grandmothers (and my grandfather) was living in London with my mother and her sister (my aunt). My grandmother chose to remain in London, running a terminus café for the bus drivers to enable to get people around. Fortunately, their house, nearby, wasn’t bombed as so much of London was. The school over the road was hit but was, at the time, empty of children, thank the Lord. My Mother was eight-years-old and got evacuated to the country for safety. She wasn’t happy and missed being with her mother and my aunt who stayed together in London. My aunt stayed home being only a baby at the time. My Mum had been sent to stay with an elderly couple with no children. They treated her badly because they’d been forced to take a child off the trains but didn’t want to. My Mother had many miserable years there. She was forced to go to a church which practised a different religion to her own.

When my Mum was alive (up until six years ago), she talked of those times. She talked of bomb shelters in the garden; of hiding in basements, (a painful parallel with the besieged Ukrainians now). She talked of rationing when a banana was like Christmas come early. However, she never talked of our missing ‘blood.’*

When I lost my Mum in 2016, my sisters and I decided that I would take all the family photos to sort through them to share them with my sisters. These photos have been sitting up in the spare room ever since. There must be a hundred, at least – I can’t bear the thought of going through them knowing that our missing relatives will be painfully and obviously absent. My sisters are very understanding and supportive which is a blessing. I will do it one day … I owe it to them … I will … when I’m ready …

*’blood’ refers to the blood of our family, our past, our history, our ancestors.

A Pot of Tea

[Photo credit Deposit Photos]

I went and had a pot of tea
And sitting there were Mum and me
With toast and orange marmalade
Just like Mum had always made

It felt so grand, us eating out
A special day, without a doubt
We sat and talked till half-past-two
The waitress brought another brew

A red tea cosy on the pot
The tea inside was steaming hot
We let it cool a little bit
I fancied cake, I must admit

A slice of orange chiffon cake
Complete with bits of chocolate Flake
Served with a jug of double cream
It was delicious, quite a dream

We laughed and ate till half-past-four
We should be headed for the door
But I was loathed to leave the scene
This place where Mum and I had been

I stopped and thought and shed some tears
It’s now been over six full years
My reason is so very plain
I so wish Mum were here again.

TEA AND CAKE

Image result for tea and cake

Today is Mum’s birthday … or, perhaps, I should say, ‘it was Mum’s birthday’. As most of you know, I lost my dear Mum a year ago. It’s been hard; very hard at times. I’ve been trying to heal from my pain, but grief is no respecter of time. Some people get over it in a couple of years, some less, but many more never.

I wasn’t sure what to do today. I wanted to do something special in honour of Mum’s birthday. I finally decided to go to a favourite café of mine to have tea and cake because that’s what she would have been doing at teatime today. It’s a quaint place with lace tablecloths under glass tops, sepia photographs on the walls, brass kettles on old-fashioned cake stands and waitress service as opposed to the usual queue up and help yourself.

I asked for a pot of tea, as opposed to a mug or cup as Mum always, always drank her favourite ‘tipple’ poured from the pot. I’m a great coffee drinker whenever I get the opportunity. It wakes me and my tastebuds up and makes me feel almost human, especially in the mornings. I never usually drink tea –  But, Mum always drank it, but never coffee. Actually, tea’s not bad – quite refreshing really. I chose a piece of carrot cake, one of my favourites, and Mum’s too, and she would have liked this one as it was homemade. She much preferred ‘the real thing’ as opposed to shop-bought ones.

I’d bought a birthday card, strange though it may seem. Perhaps, to buy a card for someone who is no longer here, in body at least, could be seen as rather odd. I feel Mum is here with me in spirit though and especially today. I sat in the café for an hour, writing my words as if I were talking to her. I can’t send it, of course, but I shall keep it with the rest of the items I have that I was able to keep after she passed away. I thought she would approve of me sitting there, having tea and cake and I told her I loved her and missed her so much. I said that I wish she were here with me. And I did.

As I write this in the evening, I am missing that phone call to say, ‘Happy Birthday, Mum’. I realise that she’s not coming back, and they’ll be no more birthdays or Christmases. In fact, they’ll be no more days at all with my Mum, at least not in this life as I know it, but maybe in the next. I hope so.

Happy Birthday, Mum x

MY FORGET-ME-NOT SHED

Image result for a blue shed

I’m aware that I’ve been away since the middle of July (or thereabouts), so that’s nearly four months which must be the longest I’ve ever been away from my blog for. A lot has happened in my life during that time.

Ten-and-a-half months have passed since I lost my beautiful Mum. That time hasn’t been like I would have expected it to be. I haven’t been able to grieve. Strangely, and somewhat disconcertingly, I haven’t been able to cry either. I still cannot look at my Mum in any of the photos that I have. This isn’t how I expected grief to be. However, I am aware that everybody grieves in their own way and in their own time. Maybe, the time isn’t right for me yet.

As for other goings-on in my life, they have been more positive. Some of you may remember that my care regime was about change drastically with new carers coming into place and old ones going. I’m pleased to say that it has all worked out far better than I could have imagined.

I was also at the beginning of having a lot of work done on my house too. This has been a prolonged process, but I am getting there gradually. My bedroom is finished and is now a haven of peace and calm in which to sleep. The new shed has been built in the garden, that is, after being ripped-off by builders who I, eventually, sent packing, and consequently, employed new ones who have done a great job.)  The shed is painted a delightful shade of forget-me-not blue (at least, I think it’s delightful – I can’t speak for the neighbours).

The next and most significant project is adapting and renewing my twenty-five-year-old kitchen. This, I’m most excited about. It’s going to have lowered worktops, a new lower hob and a sink, all of which will be accessible to me in my manual wheelchair. The work is due to start in about two weeks. I’m currently at the stage where I and my carers are frantically sorting through cupboards and drawers with the intention of clearing out everything we haven’t used in the last two years, (that includes packaged food in the units that are well past their sell-by date!) I can’t wait for the new kitchen to be installed, although I’m not eager to face all the mess and disruption. However, as they say, “you can’t make an omelette without breaking eggs”)

Well, I think that’s just about a relatively accurate round-up of what’s going on in my life at the moment. I promise I’ll try to catch up on some of your blogs as soon as I can, and I really will try not to leave it another four months until I pop into WordPress again. Thanks for sticking with me through my absence.

 

MIXED EMOTIONS (AND POTTING UP GERANIUMS)

elderly woman gardening

(Photo credit: http://www.healthtap.com)

Ok – so this isn’t a picture of my Mum and those plants aren’t actually geraniums, but to all intents and purposes, both of those things could have been facts as that’s exactly what my Mum would have been doing at this time of year if she were still here. She loved geraniums of all colours and would have been repotting them all into bigger pots as they would have grown after their dormant period in the dark and damp basement of the house. They would have all been neatly arranged on the patio outside the kitchen, making a huge splash of colour in the garden.

In fact, this was actually what she was doing along with mowing the grass, cutting the hedge and tying up raspberry canes just two weeks before she had her stroke last year. She remained in hospital from then until the day she passed away just before the New Year this year.

I miss my Mum. I hurt. I’m still hurting. I don’t when or if the hurting ever stops. I have photos of her in my living room and by my bed and yet, believe it or not, I can’t look at them. I cannot look at my Mum. I just am not able to ‘make eye-contact’ with her. Perhaps, it’s too early. Perhaps it’s the pain of not having her here anymore. Maybe, it’s the shame. Perhaps, the guilt that I wrote about in a previous post is telling me that she would be ashamed of me.

I can vaguely scan past the photos. I know the one on my desk in front of me so well. It was a photo I had which was taken only weeks before Mum had her stroke. It’s a picture of her in the garden which was always a sanctuary for her, with the big honeysuckle rambling up a large trellis covering part of the brickwork of the house behind her and next to that are the peach-coloured, climbing roses clambering up the wooden fence. The patio in front of her, adorned with pots, large and small of her favourite geraniums, orange, white and red, all in full bloom.

But, every time my eyes catch the slightest glimpse of her face or her eyes or smile in the photos, my heart is wrenched from my chest, and my mind is screaming, “Noooooo ….”  I cannot cry – I really can’t. My eyes are prickling from the sheer pressure of my tears building up behind my eyelids and fighting to get out. Maybe, I can’t can’t cry because I’m afraid that if I start, I won’t ever be able to stop. I want to go and visit her grave and lay fresh flowers there, but it’s 50 miles away with no public transport with wheelchair access so impossible. Sometimes, I still feel so close to her and almost forget for a second that she has gone. At other times, she seems so very far away.

All the legalities regarding the will, probate and selling the house are continuing to go on in the background. It’s so hard to think of my childhood home being taken over by someone else. Who knows what will happen to it … maybe, it will house another family for many more years although there is also the possibility that it will be completely gutted and turned into several flats and that’s much harder to stomach. Moving on, emotionally, isn’t easy but I have to remember too, that it was only five months ago that Mum was with us and living in that house.

Mum was a great one for ‘keeping things’, usually followed by, “It’ll come in useful for something”, a trait that I’ve inherited. Amongst all the ‘useful somethings’, we’ve unearthed photo albums, not just of our childhoods but also of Mum when she was growing up and even some of my great-grandmother in the 1800’s … real treasure … a pictorial history of my family on my Mum’s side … fascinating. It’s going to take me forever to sort through all of those photos and distribute them to our remaining family. They’ll certainly provide me with lots of happy and no doubt, funny memories too which will probably eventually get passed down to my grandchildren and who knows, perhaps their grandchildren one day? Actual history in the making. Mum would be pleased.

LOSING SIGNIFICANT OTHERS

abstract art holding hands attachment

More loss! How much more? It seems like an endless stream of significant other people in my life have departed or are leaving me. I am devastated and heartbroken. I don’t cope well with what feels like abandonment, especially as someone who has BPD or EID (Emotional Intensity Disorder) where this and rejection constantly loom like some ogre behind my shoulder, threatening to suffocate me.

I very recently lost my Mum (as some of you will know). This bereavement came five years after losing my Father. You could say that I should have expected these losses at some time, given that both my parents were in their eighties. However, this is always a major blow even after taking that into consideration.

Now, other important people in my life are leaving, and it’s beginning to get too much to bear. One of my two main Carers left last week, taking early retirement. Now, Helen, my P.A. and Support Worker is moving on after fifteen years with me. She is taking a different career path, and I will be acutely aware of her absence in my life.

Then, finally (at least for the time being) a very close friend announced yesterday that she was moving to the coast, eighty miles away to be nearer her daughter (we have known each other for nearly thirty years). We’ve had many happy times visiting places of interest, chatting over cups of coffee, pouring our hearts out to one another, and in general, putting the world to rights. We can phone or write, but with neither of us having transport or good health, it is unlikely that we will see each other again.

It’s all beginning to get a bit much, I’m lonely and am fighting hard not to fall into a pit of despair and depression. The friends that I do have seem to be mostly cyber-friends, either on Facebook, Twitter or WordPress. At least, in social media, I could put out some ‘friend requests’, but in real life, it’s not quite as easy as that. I guess if I reach the bottom, the only way to go is up, so I’ll try to hang on to that for the time being. Please, bear with me a little longer.

THE BUSYNESS OF GRIEF

Image result for white poppies

The funeral was beautiful in as far as a funeral can be thought of as ‘beautiful’. White poppies adorned the wicker casket which was interwoven with daisies and wildflowers and not the sombre, traditional dark wooden coffin that many people have. Mum was a great lover of flowers and plants, and she tended her little patch of garden so carefully over her 86 years. It’s sad to think of it being so neglected now as is the old and empty house which was my home for many decades.

It’s been six weeks since my precious Mum passed away. The sadness and loss will never leave us all, but it’s strange how people differ so much in their ways of dealing with grief. My youngest sister is very tearful and is deeply mourning the loss of my Mum. She’s unable to concentrate on her studies, nor cope with her part-time job. My other sister has travelled home again and has thrown herself into her work. However, she is frequently prone to breaking down in racking sobs and is in need of much consolation from her colleagues.

As for me, it’s as if nothing has happened. I think, if anything, I only feel numb and apart from weeping briefly at the first news of my Mum’s death (and I haven’t cried since that day), I am carrying on with life much as usual. I’m keeping myself very occupied and haven’t really stopped since the funeral. My life is as busy as ever and with assistance, I’ve been concentrating on sorting my house out as much as I physically can.

In fact, over the last two weeks, the whole of the downstairs of my house has been decorated. The builders have only just left and there is a huge mountain of mess to clear up. The smell of paint is lingering and I haven’t quite got used the new colour scheme yet. The new curtains are being put up tomorrow along with the new ceiling lights. It’s been ‘all go’ for a few weeks now and I’ve felt quite excited by it all but somehow, also exhausted in equal measure.

I know in my heart that my frantic busyness is just a way of coping, or perhaps, rather a way of not coping or not wanting to face reality because it is all too painful. However, reality has a way of kicking us in the ribs when we try to avoid it. There are Mum’s possessions to deal with and the house to sell. There is so much of everything to be sorted into heaps of ‘deal with now’ or ‘deal with later’.

There are so many practical issues to deal with that I haven’t had time for emotions. Emotions are something of which I’ve had far too many of in my life and I’m not welcoming these new and painful feeling that are threatening to engulf me. I have been fighting them off for weeks but I know, or at least I think I know that as soon as I stop rushing around, those emotions will not only wash over me but quite possibly drown me.

Frighteningly, this seems a distinct possibility and I find myself desperately looking for the person that can ‘save’ me. But then, I realise that very person is the one no longer with me other than in spirit and spirit doesn’t seem enough now. I’m not a child anymore and yet right now, I need my Mum more than ever and she isn’t there, and I have to face the painful fact that she will never be here again. Rest in Peace, Mum. Rest in Peace.

 

 

 

GRIEF WITHOUT DEATH

I miss my Mum. I miss her so much.  A death you would think.  No, my Mum hasn’t passed away, but she’s had a severe stroke and has been in the hospital for nearly three months now. I miss her presence in my life – she was always there to talk to when I had problems with my children growing up and always in these later years when I’ve been battling with my mental heath.

She used to support me through everything and as the years ticked by, I was the one supporting her (and rightly so). We would talk on the phone for many hours, putting the world to rights and putting each other to rights. We rarely had a cross word.

I have to confess, there have been times when it’s felt a bit of a chore to have to phone my Mum every day, sometimes twice a day in more recent years.  I would, perhaps, think, “I want to spend more time with friends” on that particular night or “I’d like to spend the time writing my blog”.  Worse still, I’d be keen to text a good friend for a heart-to-heart or get that email written that I’ve been meaning to do for days.

Now, the evenings come, and I find myself thinking,  “I’ll just phone to see how ……….” – My sentence is cut short by the stark realisation that my Mum is not occupying the same space as she used to do. Something else is in her place – a horrible silence broken only by memories of how our relationship used to be.

Gone are our chats, our shared laughter and our mutual support. There are no long discussions about what she had planted in her garden that day with the full expectation of seeing her little seedlings and shoots develop into strong, tall plants. She’d tell me how she’d tied them up with green, garden twine against bamboo canes and watch them develop and bloom.

She won’t go back to that house again, nor her beloved garden that was her sanctuary, her escape from the world when life got difficult – not now. She could never manage the stairs, feed herself or live without 24-hour care and yet she’d managed independently since her separation from my father. She had lived in our family home for over sixty years. And to think the grass was being cut by her only two weeks before she had her stroke.

The damage to her brain is so extensive that she’s still unable to communicate verbally or in any other way,  and any hope of further improvements is met with serious doubt by the doctors and consultants.  The physios, the OTs and the speech and language therapists are not hopeful either.  I try to talk to her on the phone when I can’t get there – hoping to get a response but my questions always have the same replies – nothing – it’s heartbreaking.

I’m still travelling up to the City by train to see her at least once a week. The journey is always tough, fraught with difficulties and exhausting but I need to be there. I need to retain that little bit of hope. However, she isn’t even able to acknowledge that I’m there and I wonder where she has gone inside that broken shell of a body.

I feel I should not be grieving as she is still present with me. But I am – I’m grieving the loss of the person that my Mum once was; her presence in my life, her faded personality and her love, care and affection. She is no longer there.  But grieving when she is still alive; is that right? Is that acceptable? It is simply grief without death.